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FURTHER DETAILS OF SERVICES & INITIATIVES

Scroll down the page for further details of the dementia services and initiatives listed above
(listed in alphabetical order for ease of reference)

ADMIRAL NURSES - DEMENTIA UK

Families affected by dementia can speak to an Admiral Nurse on Dementia UK’s free national Helpline - 0800 888 6678 (Monday to Friday 9am-9pm, Saturday and Sunday 9am-5pm) or email helpline@dementiauk.org.  They are trained, developed and supported by Dementia UK and have the skills, knowledge and experience to talk about a wide range of dementia issues, amongst others: 

  • understanding the diagnosis plus practical tips and advice for caring for a loved one with dementia; 

  • transitioning into nursing or a residential home, or stays in hospital; 

  • understanding symptoms and changes in behaviour, and managing your own feelings 

 

https://www.dementiauk.org/get-support/admiral-nursing/

Alternatively, the Closer to Home project allows carers to book a virtual appointment at a dedicated time and place that suits their needs.  For more information see: https://www.dementiauk.org/get-support/closer-to-home/ 

AGE CONCERN EASTBOURNE

An independent local charity for older people in Eastbourne providing activities, most of which are dementia friendly, as well as services, information and advice to enhance the experience of later life.

For more details visit:

http://www.ageconcerneastbourne.org.uk

or see our Whats On Where Page for details of their Making Memories day club.

AGE UK EAST SUSSEX

Age UK East Sussex is an independent charity working in the local community to help older people. Offering services including Information & Advice about entitlements and accessing services. 

 

Tel: 01273 476704

Email: information@ageukeastsussex.org.uk

For more details visit:

https://www.ageuk.org.uk/eastsussex/

ALZHEIMER'S SOCIETY

A nationwide charity which campaigns for change, funds research and provides advice and support. For more information visit: 

https://www.alzheimers.org.uk

ASSOCIATION OF CARERS

The Association of Carers provides free, volunteer-led services to unpaid Carers in East Sussex in the hope of reducing the sense of isolation experienced by many carers. This includes respite and befriending visits, computer help, telephone support, online activities, lunch clubs, Carers’ Cafes and more. The carers they support come from a range of backgrounds, and are caring for people living with a range of conditions/disabilities.

For more details visit:

https://associationofcarers.org.uk/

BEXHILL DEMENTIA ACTION ALLIANCE

Bexhill DAA is made up of individuals and organisations who work together towards raising understanding of dementia, erasing the stigma of dementia, and improving access to things which may improve the quality of life for people with dementia and their carers in the Bexhill area. They run a singing group - see our What's On Where page for details - and an allotment.  They also signpost to other dementia friendly services and events in the area, and through their Dementia Champions hold regular awareness sessions.

For more information please contact the BDAA at: Bexhilldaa@gmail.com

or visit their website at: www.bexhilldementiaactionalliance.co.uk

BRITISH RED CROSS

A volunteer will help with household chores or sitting service.  6 FREE 3 hour sessions.

 

For more details, contact Charlotte by email at: cmagan@redcross.org.uk

Or on 07711 085164

BUTTERFLY SCHEME

The Butterfly Scheme provides a system of hospital care for people living with dementia or who simply find that their memory isn’t as reliable as it used to be; memory impairment can make hospitalisation distressing, but it needn’t be. In hospital, dozens of staff can pass through a patient’s life each day and in order to deliver appropriate care, they need to know that a patient has dementia or memory impairment and how to support them; this is where the Butterfly Scheme comes in.

 

The Butterfly Scheme has now been adopted by nearly two hundred hospitals and healthcare teams across the UK and Ireland. Hospital and healthcare staff really do want to care well, and they typically enjoy using the skills and systems provided by the Butterfly Scheme, enabling them to care appropriately for this patient group – including working in partnership with carers.

The EDAA is pleased to announce that many East Sussex hospitals have adopted the Scheme, including the Eastbourne District General Hospital.

For more details, visit:

https://butterflyscheme.org.uk/

CARE QUALITY COMMISSION

An independent body responsible for rating care providers in the UK.

For further information, visit:

https://www.cqc.org.uk

or contact them

telephone : 03000 616161
Email: enquiries@cqc.org.uk

CARE FOR THE CARERS

Free practical and emotional advice (face to face, by phone, or online).

Be put in touch with other carers, get help navigating the range of local services.

For further information, visit:

www.cftc.org.uk

or telephone 01323 738 390

CITIZENS ADVICE EASTBOURNE

Provides free confidential advice.

For more information visit: http://www.eastbournecab.co.uk

or telephone: 0800 133 8848

CROSS ROADS CARE: BRIGHTON, HOVE AND EAST SUSSEX

Part of a national network of charities providing support for carers and the people they care for.

For more information visit: http://www.esbhcrossroads.org.uk

DEEP 

Dementia Engagement & Empowerment Project

A national initiative, DEEP engages and empowers people living with dementia to influence attitudes, services and policies that affect their lives. 

For further information visit: 

www.dementiavoices.org.uk

For information about Sea DEEP, a DEEP project within Eastbourne please go to the webpage below.

DEMENTIA DIARIES

A UK-wide project that brings together people’s diverse experiences of living with dementia as a series of audio diaries.

For more information visit:

https://dementiadiaries.org

DEMENTIA INFORMATION & SUPPORT COURSES (DISC)

DISC provide free support and information for carers of people living with dementia all the way through and beyond the caring journey.  This can be over the phone, by post, through email, or in the form of facilitated support groups and information courses which are also free.  DISC also offer paid for tailored packages for corporate staff training. 

For further information, visit:
https://www.discdementiasupport.org

DEMENTIA RESEARCH UNIT

The Dementia Research Unit (DRU) is dedicated to improving treatment and care for people living with Alzheimer's disease and other types of dementia, by carrying out a range of research studies including world class clinical trials. You can get involved by volunteering to take part.

If you would like to find out how you can participate in their clinical research or other dementia studies, or if you want to find out more about their current research, please contact the Dementia Research Unit - see details below.

Tel: 01892 603107

email: DementiaResearchUnit@spft.nhs.uk

 

or visit their website at www.sussexpartnership.nhs.uk/our-research

DEMENTIA SINGING EXPERIENCE, SUSSEX

Dementia Singing Experience, Sussex take structured and interactive singing, activity and craft sessions into community day care centres, dedicated care homes and memory cafes in order to support those living with dementia. They can also offer sessions online.

For more information visit: 

https://www.dementiasingingexperience.com

EASTBOURNE DEMENTIA CLUB

A monthly supper club run by volunteers for people who live with/support someone living with dementia. To find out more:

telephone: 07800 874361 at evenings or weekends;

 

or,

 

email eastbournedementiaclub@gmail.com 

ESCC DEMENTIA SUPPORT SERVICES

For information about the Memory Assessment Service and Post Diagnostic support services - information, advice and support tailored to your needs - provided by ESCC please visit https://www.eastsussex.gov.uk/social-care/health-advice/mental-health/dementia-support-in-east-sussex

For a referral please contact ESCC Adult Social Care 

Phone: 0345 60 80 191
8am to 8pm, 7 days a week (including bank holidays). Calls are charged at a local rate.

Email: hscc@eastsussex.gov.uk

or ask your GP

East Sussex Floating Support Service, formerly STEPS

ESFSS is primarily a Housing Support Service but they will assist people over the age of 60 who wish to apply for Attendance Allowance or a Blue Badge. They can also assist with carers allowance as an add-on to requests regarding Attendance Allowance or Blue Badge but do not accept referrals for just carers allowance.

Tel 0800 023 9380.

EAST SUSSEX 1SPACE

1Space is a directory of care, support, and wellbeing services mainly for adults. [For a broader directory, encompassing all community information & events in East Sussex, see our sister site, ESCIS.]

The 1Space Directory has been designed to bring together groups and organisations offering services for people of all ages and a diversity of needs, into one place online.

East Sussex 1Space has been designed by East Sussex County Council with the help of volunteers including service users, carers, members of the public and service providers to ensure it is easy to use and understand for both visitors looking for services and service providers registering their services.

Using the Categories to search you can browse across a range of areas giving an opportunity to see a range of different services available across the county.

From the search results you can click on any Provider and read about the service(s) they offer and find out how to contact them.

For further information, visit:
https://1space.eastsussex.gov.uk/

EAST SUSSEX COMMUNITY INFORMATION SERVICE (ESCIS)

ESCIS is a computer database of local and community information developed and managed by the Library and Information Service of East Sussex County Council in association with Brighton and Hove Library Service.

It is a free resource for everyone. It is free to be listed and free to use.

ESCIS is a broad directory, encompassing all community information and events in East Sussex.

The EDAA would encourage any local dementia services and initiatives to upload information to ESCIS.

For more information, visit:

https://www.escis.org.uk/

EAST DEAN CARERS AND CARED FOR COFFEE MORNINGS

​For more information contact Stephanie Carter on 01323 422124 or see our What's On Where page.

EAST SUSSEX FIRE & RESCUE SERVICE

​For information about arranging home safety visits and fitting smoke alarms visit:

https://www.esfrs.org

THE FORGET ME NOT GROUP

Day club for people with dementia and memory problems. No charge, small donation towards cost of refreshments suggested.

​For more information, see our What's On Where Page or contact Eddie on 01323 768 880.

HEALTH & SOCIAL CARE CONNECT SERVICE 

HSCC can provide details of ESCC's Dementia Support Service and help with referrals.

 

For more information visit:​

https://new.eastsussex.gov.uk/social-care/getting-help-from-us/contact-adult-social-care

or contact them at:

email: HSCC@eastsussex.gov.uk

tel: 0345 608 0191

HIDDEN DISABILITIES
SUNFLOWER SCHEME

The scheme is to help people with hidden disabilities, which includes people living with dementia.

Wearing the Hidden Disabilities Sunflower discreetly indicates to people around you - including staff, colleagues, and health professionals - that you need additional support, help or a little more time. Above all, it is used anywhere where people meet. 

Since its launch in 2016, it has now been adopted globally by major airports and venues and in the UK, by many supermarkets, railway and coach stations, leisure facilities, the NHS, a number of police, fire and ambulance services, and an increasing number of small and large businesses and organisations. 

As this is an initiative welcomed by Sea DEEP members, and because the EDAA recognises that some people living with dementia will find it useful, we will be helping to promote the scheme with local businesses and organisations. We have also secured a number of lanyards and cards for distribution with money kindly donated for this purpose by Sussex Police.  Please contact us if you would like to obtain a lanyard for yourself or someone you are caring for.

 

For further information, visit:

https://hiddendisabilitiesstore.com/ 

To find out which Eastbourne retail stores and organisations are part of the Scheme, visit:

https://hiddendisabilitiesstore.com/find-the-sunflower

INNOVATIONS IN DEMENTIA

A not-for-profit Community Interest Company (CIC) which works with other organisations to help people living with dementia to keep control of their lives.

 

For more information visit:

http://www.innovationsindementia.org.uk

KNOW DEMENTIA

A Sussex based charity providing advice and support to people living with dementia and their family members/carers. Know Dementia also manage several memory cafes in East Sussex.

 

For more information visit:http://knowdementia.co.uk

or see our What's On Where Page

LEWES AND DISTRICT DEMENTIA ACTION ALLIANCE

Training given to local companies and a family and friends support group just starting.

 

For more information visit: https://www.dementiafriendlylewes.org.uk     

or telephone 07546 501428

MAKING MAGICAL MOMENTS, SEAFORD

A community-based support group, operating in the Seaford area, for people with dementia, mental health issues, and older people with disabilities in need of support.

 

For more information visit:

https://makingmagicalmoments.co.uk

MAKING MEMORIES, HAILSHAM

A fun and social space for carers of people with dementia to attend with the person they care for, or on their own. Run in partnership between Care for the Carers and Ivy House.

 

Events are currently taking place online so please visit the website for more information:

https://www.cftc.org.uk/event/dementia-group-hailsham/all/

or telephone on 01323 738390 

MEMORY CAFE, POLEGATE

A free social event for local people with memory loss, Alzheimer's or other Dementia's and their carers. Run in partnership between Home Instead Senior Care and the Wealden Dementia Action Alliance.

 

For further information visit:

https://www.homeinstead.co.uk/uploads/wysiwyg/Polegate_Memory_Cafe.pdf

or see our Whats On Where page

MEMORY LANE EASTBOURNE

Social Activities for People with Dementia and their Carers

Social activities for people living with dementia and their carers, e.g. Singing In the Lane, Circle Dancing, Meet & Greet, indoor bowls.  Also monthly cinema film nights & swimming sessions and the opportunity to use their allotment.

No fees, donations welcome.

 

For more information telephone 07393 834498

or

email:memorylane.eastbourne@gmail.com

MUSIC FOR THE MEMORY

 

A local charity that supports those living with dementia or experiencing memory issues.  They run fun, free, no obligation sessions on a Monday morning which primarily involves singing but also includes some physical (seated or standing) and vocal exercises, as well as a short quiz.

For more information visit: https://musicforthememory.net

 

RE-ENGAGE

Provides vital, life-enhancing social connections for older people at a time in their lives when their social circles are diminishing.

For further information visit: https://www.reengage.org.uk

SOCIETY OF LATER LIFE ADVISERS

SOLLA helps people and their families in finding trusted accredited financial advisers who understand financial needs in later life. This includes decisions that may need to be made when looking at issues such as paying for care.

For further information visit: https://societyoflaterlifeadvisers.co.uk/About

SPORTING MEMORIES

The Sporting Memories Foundation tackles Dementia, Depression and Loneliness through the power of sports reminiscence.

For further information visit:https://www.sportingmemoriesnetwork.com

SUSSEX PARTNERSHIP NHS FOUNDATION TRUST

For further information visit:

https://www.sussexpartnership.nhs.uk

SUSSEX POLICE -
HERBERT PROTOCOL

Caring for people with dementia or Alzheimer's can be challenging. 

There's a risk they can at some point start to 'walk about'. This may only be into the garden or street for a short time, but some people can get lost and go missing.

So, planning ahead to keep them safe is really important.

The Herbert Protocol is a form that carers, family or friends of a vulnerable person can fill in. It contains a list of information to help the police if the person goes missing, including:

medication required

mobile numbers

places previously located

a recent photograph

The EDAA is pleased to support this initiative; if someone living with dementia goes missing, information relating to the person will be immediately available to Sussex Police which will hopefully enable them to locate the person more quickly. 

 

For further information, and to download the form, visit:

https://www.sussex.police.uk/herbertprotocol

TIME FOR DEMENTIA 

The Time for Dementia project, supported by the Alzheimer’s Society, pairs families affected by dementia with students from local universities. Meetings take place three times a year (either at the family's home or online), enabling people living with dementia and their families or other caregivers to share their experiences and thoughts, thereby helping to improve dementia care by helping to train the healthcare professionals of tomorrow.

 

For more information, to make a referral or get involved, please telephone on 07858 678962 or contact the team by email at:

timefordementia@alzheimers.org.uk

TOWNER GALLERY'S DEMENTIA FRIENDLY FILM SCREENINGS

Towner Eastbourne is presenting a monthly Dementia Friendly Screening on the 1st Wednesday of each month. 

For further information see our What's On Where page.

WEALDEN DEMENTIA ACTION ALLIANCE

Wealden DAA provides information about Dementia support and services, and holds forums for those wanting to help make Wealden more dementia inclusive. They also run and support activities.  

 

The EDAA is pleased to be working alongside Wealden DAA; our paths often cross with people living with dementia accessing and visiting services either in Eastbourne or Wealden.

For further information about Wealden DAA, visit:

https://www.wealden.gov.uk/community-and-safety/wealden-dementia-action-alliance-events-and-forums/ 

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