FURTHER DETAILS OF SERVICES & INITIATIVES

Scroll down the page for further details of the dementia services and initiatives listed above
(listed in alphabetical order for ease of reference)

 

ADMIRAL NURSES - DEMENTIA UK

Eastbourne's Admiral Nurse Clinic provides specialist support for carers of people living with dementia. They are trained, developed and supported by Dementia UK and have the skills, knowledge and experience to talk about a wide range of dementia issues, amongst others: 

  • understanding the diagnosis plus practical tips and advice for caring for a loved one with dementia; 

  • transitioning into nursing or a residential home, or stays in hospital; 

  • understanding symptoms and changes in behaviour, and managing your own feelings 


https://www.dementiauk.org/get-support/admiral-nursing/

You can book an appointment to see an Admiral Nurse if you are a carer who is registered with one of the following practices:

the Victoria Medical Centre group - Green Street Clinic, Enys Rd Surgery, Bolton Road Surgery and Eastbourne Station Health Centre

Manor Park Surgery, Polegate

Downlands Medical Centre, Polegate

To book an appointment call 01323 407837 or email sussexanclinic@dementiauk.org 

Alternatively, the Closer to Home project allows carers to book a virtual appointment at a dedicated time and place that suits their needs.  For more information see: https://www.dementiauk.org/get-support/closer-to-home/ 

 

AGE CONCERN EASTBOURNE

An independent local charity for older people in Eastbourne providing activities, most of which are dementia friendly, as well as services, information and advice to enhance the experience of later life.

For more details visit:

http://www.ageconcerneastbourne.org.uk

or see our Whats On Where Page

 

AGE UK EAST SUSSEX

An independent local charity working in the local community to help older people.


For more details visit:

https://www.ageuk.org.uk/eastsussex/

 

ALZHEIMER'S SOCIETY

A nationwide charity which campaigns for change, funds research and provides advice and support. For more information visit: 

https://www.alzheimers.org.uk

 

ASSOCIATION OF CARERS

The Association of Carers provides free, volunteer-led services to unpaid Carers in East Sussex in the hope of reducing the sense of isolation experienced by many carers. This includes respite and befriending visits, computer help, telephone support, online activities, lunch clubs, Carers’ Cafes and more. The carers they support come from a range of backgrounds, and are caring for people living with a range of conditions/disabilities.

For more details visit:

https://associationofcarers.org.uk/

 

BEXHILL DEMENTIA ACTION ALLIANCE

Bexhill DAA is made up of individuals and organisations who work together towards raising understanding of dementia, erasing the stigma of dementia, and improving access to things which may improve the quality of life for people with dementia and their carers in the Bexhill area. They run a singing group - see our What's On Where page for details - and an allotment.  They also signpost to other dementia friendly services and events in the area, and through their Dementia Champions hold regular awareness sessions.

For more information please contact the BDAA at: Bexhilldaa@gmail.com

or visit their website at: www.bexhilldementiaactionalliance.co.uk

 

BRITISH RED CROSS

A volunteer will help with household chores or sitting service.  6 FREE 3 hour sessions.


For more details, contact Charlotte by email at: cmagan@redcross.org.uk

Or on 01273 227826 or 07711 085164

 

BUTTERFLY SCHEME

The Butterfly Scheme provides a system of hospital care for people living with dementia or who simply find that their memory isn’t as reliable as it used to be; memory impairment can make hospitalisation distressing, but it needn’t be. In hospital, dozens of staff can pass through a patient’s life each day and in order to deliver appropriate care, they need to know that a patient has dementia or memory impairment and how to support them; this is where the Butterfly Scheme comes in.


The Butterfly Scheme has now been adopted by nearly two hundred hospitals and healthcare teams across the UK and Ireland. Hospital and healthcare staff really do want to care well, and they typically enjoy using the skills and systems provided by the Butterfly Scheme, enabling them to care appropriately for this patient group – including working in partnership with carers.

The EDAA is pleased to announce that many East Sussex hospitals have adopted the Scheme, including the Eastbourne District General Hospital.

For more details, visit:

https://butterflyscheme.org.uk/

 

CARE QUALITY COMMISSION

An independent body responsible for rating care providers in the UK.

For further information, visit:

https://www.cqc.org.uk

or contact them

telephone : 03000 616161
Email: enquiries@cqc.org.uk

 

CARE FOR THE CARERS

Free practical and emotional advice (face to face, by phone, or online).

Be put in touch with other carers, get help navigating the range of local services.

For further information, visit:

www.cftc.org.uk

or telephone 01323 738 390

 

CITIZENS ADVICE EASTBOURNE

Provides free confidential advice.

For more information visit: http://www.eastbournecab.co.uk

or telephone: 0800 133 8848

 

CROSS ROADS CARE: BRIGHTON, HOVE AND EAST SUSSEX

Part of a national network of charities providing support for carers and the people they care for.

For more information visit: http://www.esbhcrossroads.org.uk

 

DEEP 

Dementia Engagement & Empowerment Project

A national initiative, DEEP engages and empowers people living with dementia to influence attitudes, services and policies that affect their lives. 

For further information visit: 

www.dementiavoices.org.uk

For information about Sea DEEP, a DEEP project within Eastbourne please go to the webpage below.

 

DEMENTIA DIARIES

A UK-wide project that brings together people’s diverse experiences of living with dementia as a series of audio diaries.

For more information visit:

https://dementiadiaries.org

 

DEMENTIA INFORMATION & SUPPORT COURSES (DISC)

DISC provide free support and information for carers of people living with dementia all the way through and beyond the caring journey.  This can be over the phone, by post, through email, or in the form of facilitated support groups and information courses which are also free.  DISC also offer paid for tailored packages for corporate staff training. 

For further information, visit:
https://www.discdementiasupport.org

 

DEMENTIA SINGING EXPERIENCE, SUSSEX

Dementia Singing Experience, Sussex take structured and interactive singing, activity and craft sessions into community day care centres, dedicated care homes and memory cafes in order to support those living with dementia. They can also offer sessions online.

For more information visit: 

https://www.dementiasingingexperience.com

 

EAST SUSSEX 1SPACE

1Space is a directory of care, support, and wellbeing services mainly for adults. [For a broader directory, encompassing all community information & events in East Sussex, see our sister site, ESCIS.]

The 1Space Directory has been designed to bring together groups and organisations offering services for people of all ages and a diversity of needs, into one place online.

East Sussex 1Space has been designed by East Sussex County Council with the help of volunteers including service users, carers, members of the public and service providers to ensure it is easy to use and understand for both visitors looking for services and service providers registering their services.


Visitors can search for services in a number of ways from the homepage:

Using keywords in the ‘Search for’ box. This search scans the database of Services looking for your keywords within their service page information and the categories they are linked to.

Using the location search ‘Within’ and ‘Miles of’ the search will list the nearest to the location at the top of the list followed by the next nearest throughout the county.

Using the combined Keyword ‘Search for’ and location ‘Within’ and ‘Miles of’ will use the two searches to find what you are looking for.

Using the Categories to search you can browse across a range of areas giving an opportunity to see a range of different services available across the county.

From the search results you can click on any Provider and read about the service(s) they offer and find out how to contact them.

For further information, visit:
https://1space.eastsussex.gov.uk/

 

EAST SUSSEX COMMUNITY INFORMATION SERVICE (ESCIS)

ESCIS is a computer database of local and community information developed and managed by the Library and Information Service of East Sussex County Council in association with Brighton and Hove Library Service.

It is a free resource for everyone. It is free to be listed and free to use.

ESCIS is a broad directory, encompassing all community information and events in East Sussex.

The EDAA would encourage any local dementia services and initiatives to upload information to ESCIS.

For more information, visit:

https://www.escis.org.uk/

 

EAST DEAN CARERS AND CARED FOR COFFEE MORNINGS

​For more information contact Stephanie Carter on 01323 422124 or see our What's On Where page.

 

EAST SUSSEX FIRE & RESCUE SERVICE

​For information about arranging home safety visits and fitting smoke alarms visit:

https://www.esfrs.org

 

THE FORGET ME NOT CLUB

Day club for people with dementia and memory problems. No charge, small donation towards cost of refreshments suggested.

​For more information, see our What's On Where Page or contact Eddie on 01323 768 880.

 

HEALTH & SOCIAL CARE CONNECT SERVICE 

HSCC can help with the completion of assessment forms for attendance allowance and other benefits. They can also provide details of the Dementia Support Service. 


For more information visit:​

https://new.eastsussex.gov.uk/social-care/getting-help-from-us/contact-adult-social-care

or contact them at:

email: HSCC@eastsussex.gov.uk

tel: 0345 608 0191

 

HIDDEN DISABILITIES
SUNFLOWER SCHEME

The scheme is to help people with hidden disabilities, which includes people living with dementia.

Wearing the Hidden Disabilities Sunflower discreetly indicates to people around you - including staff, colleagues, and health professionals - that you need additional support, help or a little more time. Above all, it is used anywhere where people meet. 

Since its launch in 2016, it has now been adopted globally by major airports and venues and in the UK, by many supermarkets, railway and coach stations, leisure facilities, the NHS, a number of police, fire and ambulance services, and an increasing number of small and large businesses and organisations. 

As this is an initiative welcomed by Sea DEEP members, and because the EDAA recognises that some people living with dementia will find it useful, we will be helping to promote the scheme with local businesses and organisations. We have also secured a number of lanyards and cards for distribution with money kindly donated for this purpose by Sussex Police.  Please contact us if you would like to obtain a lanyard for yourself or someone you are caring for.


For further information, either contact us or visit:

https://hiddendisabilitiesstore.com/ 

To find out which Eastbourne retail stores and organisations are part of the Scheme, visit:

https://hiddendisabilitiesstore.com/find-the-sunflower

 

INNOVATIONS IN DEMENTIA

A not-for-profit Community Interest Company (CIC) which works with other organisations to help people living with dementia to keep control of their lives.


For more information visit:

http://www.innovationsindementia.org.uk

 

THE IVY DEMENTIA CENTRE


For more information visit: https://www.ivyhouse-dementiacare.com

or see our What's On Where Page

 

KNOW DEMENTIA

A Sussex based charity providing advice and support to people living with dementia and their family members/carers. Know Dementia also manage several memory cafes in East Sussex.


For more information visit:http://knowdementia.co.uk

or see our What's On Where Page

 

LEWES DEMENTIA ACTION ALLIANCE

Training given to local companies and a family and friends support group just starting.


For more information visit: www.dementiafriendlylewes.org.uk

or telephone 07546 501428

 

MAKING MAGICAL MOMENTS, SEAFORD

A community-based support group, operating in the Seaford area, for people with dementia, mental health issues, and older people with disabilities in need of support.


For more information visit:

https://makingmagicalmoments.co.uk

 

MAKING MEMORIES, HAILSHAM

A fun and social space for carers of people with dementia to attend with the person they care for, or on their own. Run in partnership between Care for the Carers and Ivy House.


Events are currently taking place online so please visit the website for more information:

https://www.cftc.org.uk/event/dementia-group-hailsham/all/

or telephone on 01323 738390 

 

MEMORY CAFE, POLEGATE

A free social event for local people with memory loss, Alzheimer's or other Dementia's and their carers. Run in partnership between Home Instead Senior Care and the Wealden Dementia Action Alliance.


For further information visit:

https://www.homeinstead.co.uk/uploads/wysiwyg/Polegate_Memory_Cafe.pdf

or see our Whats On Where page

 

MEMORY LANE EASTBOURNE

Social Activities for People with Dementia and their Carers

Social activities for people living with dementia and their carers, e.g. Singing In the Lane, Circle Dancing, Meet & Greet, indoor bowls.  Also monthly cinema film nights & swimming sessions and the opportunity to use their allotment.

No fees, donations welcome.


See our What's On Where page for more information or contact Carol on 07393 834498

Christ the King Church Hall, 3 Princes Road, Eastbourne BN23 6HT

 

MUSIC FOR THE MEMORY


A local charity that supports those living with dementia or experiencing memory issues.  They run fun, free, no obligation sessions on a Monday morning which primarily involves singing but also includes some physical (seated or standing) and vocal exercises, as well as a short quiz.

For more information visit: https://musicforthememory.net


 

RE-ENGAGE

Provides vital, life-enhancing social connections for older people at a time in their lives when their social circles are diminishing.

For further information visit: https://www.reengage.org.uk

 

SPORTING MEMORIES

The Sporting Memories Foundation tackles Dementia, Depression and Loneliness through the power of sports reminiscence.

For further information visit:https://www.sportingmemoriesnetwork.com

 

STEPS

STEPS to Stay Independent - Eastbourne & Lewes

A free and confidential housing support service for people aged 60 or over, to help them to stay living independently.

For further information visit:

https://www.lewes-eastbourne.gov.uk/community/covid-19/steps-to-stay-independent/

 

SUPPORT WITH CONFIDENCE

Support With Confidence provides a directory of vetted and approved providers who offer a wide range of care and support services for adults in East Sussex.

Support With Confidence makes every effort to ensure that the information in the Directory is accurate and up to date. The details of scheme members, including the description of the goods or services they provide, is based upon information supplied by them.

Support with Confidence carries out an initial vetting process of all members, prior to approval. Following approval, the scheme will monitor and review customer comments to check that members continue to comply with the terms of the scheme and treat customers safely and fairly.

The scheme cannot however:

Guarantee the financial status of any member

Accept any liability for any goods or services provided by any member

Accept any liability for any mistakes or inaccuracies in members details

Guarantee the quality or condition of any goods or services provided by any member

Guarantee that the price of goods and services supplied is competitive relative to any other member.

For further details, visit:
https://apps.eastsussex.gov.uk/socialcare/athome/approvedproviders/

 

SUSSEX PARTNERSHIP NHS FOUNDATION TRUST

For further information visit:

https://www.sussexpartnership.nhs.uk

 

SUSSEX POLICE -
HERBERT PROTOCOL

Caring for people with dementia or Alzheimer's can be challenging. 

There's a risk they can at some point start to 'walk about'. This may only be into the garden or street for a short time, but some people can get lost and go missing.

So, planning ahead to keep them safe is really important.

The Herbert Protocol is a form that carers, family or friends of a vulnerable person can fill in. It contains a list of information to help the police if the person goes missing, including:

medication required

mobile numbers

places previously located

a recent photograph

The EDAA is pleased to support this initiative; if someone living with dementia goes missing, information relating to the person will be immediately available to Sussex Police which will hopefully enable them to locate the person more quickly. 


For further information, and to download the form, visit:

https://www.sussex.police.uk/herbertprotocol

 

TOWNER GALLERY'S OPEN ENDED INITIATIVE

For people with memory problems and their carers. Facilitated access to the Towner's unique collection. Conversations through art rather than formal tours.

Currently paused while renovation works take place.


Telephone 01323 434 670 for more information. 

 

WEALDEN DEMENTIA ACTION ALLIANCE

The EDAA is pleased to be working alongside Wealden DAA; our paths often cross with people living with dementia accessing and visiting services either in Eastbourne or Wealden.

For further information about Wealden DAA, visit:

https://www.wealden.gov.uk/community-and-safety/wealden-dementia-action-alliance-events-and-forums/