FURTHER DETAILS OF SERVICES & INITIATIVES

Scroll down the page for further details of the dementia services and initiatives listed above
(listed in alphabetical order for ease of reference)


Please note this page is in the process of being updated.

 
Volunteers

ADMIRAL NURSES - DEMENTIA UK

The new Admiral Nurse Clinic provides specialist support for carers of people living with dementia. They are trained, developed and supported by Dementia UK and have the skills, knowledge and experience to talk about a wide range of dementia issues, amongst others: 

  • understanding the diagnosis plus practical tips and advice for caring for a loved one with dementia; 

  • transitioning into nursing or a residential home, or stays in hospital; 

  • understanding symptoms and changes in behaviour, and managing your own feelings 


https://www.dementiauk.org/get-support/admiral-nursing/


You can book an appointment to see an Admiral Nurse if you are a carer who is registered with one of the following practices:

the Victoria Medical Centre group - Green Street Clinic, Enys Rd Surgery, Bolton Road Surgery and Eastbourne Station Health Centre

Manor Park Surgery, Polegate

Downlands Medical Centre, Polegate

To book an appointment call 01323 407837 or email sussexanclinic@dementiauk.org 


 

ASSOCIATION OF CARERS

The Association of Carers provides free, volunteer-led services to unpaid Carers in East Sussex in the hope of reducing the sense of isolation experienced by many carers. This includes respite and befriending visits, computer help, telephone support, online activities, lunch clubs, Carers’ Cafes and more. The carers they support come from a range of backgrounds, and are caring for people living with a range of conditions/disabilities.

For more details visit:

https://www.instagram.com/associationofcarers/

https://twitter.com/assocofcarers

https://www.facebook.com/AssociationofCarers/

https://associationofcarers.org.uk/

High Fives
 

BUTTERFLY SCHEME

The Butterfly Scheme provides a system of hospital care for people living with dementia or who simply find that their memory isn’t as reliable as it used to be; memory impairment can make hospitalisation distressing, but it needn’t be. In hospital, dozens of staff can pass through a patient’s life each day and in order to deliver appropriate care, they need to know that a patient has dementia or memory impairment and how to support them; this is where the Butterfly Scheme comes in.


The Butterfly Scheme has now been adopted by nearly two hundred hospitals and healthcare teams across the UK and Ireland. Hospital and healthcare staff really do want to care well, and they typically enjoy using the skills and systems provided by the Butterfly Scheme, enabling them to care appropriately for this patient group – including working in partnership with carers.

The EDAA is pleased to announce that many East Sussex hospitals have adopted the Scheme, including the Eastbourne District General Hospital.

For more details, visit:

https://butterflyscheme.org.uk/

Volunteer Group
 
Volunteers

EAST SUSSEX 1SPACE

1Space is a directory of care, support, and wellbeing services mainly for adults. [For a broader directory, encompassing all community information & events in East Sussex, see our sister site, ESCIS.]

The 1Space Directory has been designed to bring together groups and organisations offering services for people of all ages and a diversity of needs, into one place online.

East Sussex 1Space has been designed by East Sussex County Council with the help of volunteers including service users, carers, members of the public and service providers to ensure it is easy to use and understand for both visitors looking for services and service providers registering their services.


Visitors can search for services in a number of ways from the homepage:

Using keywords in the ‘Search for’ box. This search scans the database of Services looking for your keywords within their service page information and the categories they are linked to.

Using the location search ‘Within’ and ‘Miles of’ the search will list the nearest to the location at the top of the list followed by the next nearest throughout the county.

Using the combined Keyword ‘Search for’ and location ‘Within’ and ‘Miles of’ will use the two searches to find what you are looking for.

Using the Categories to search you can browse across a range of areas giving an opportunity to see a range of different services available across the county.

From the search results you can click on any Provider and read about the service(s) they offer and find out how to contact them.

For further information, visit:
https://1space.eastsussex.gov.uk/

 
Volunteer Group

EAST SUSSEX COMMUNITY INFORMATION SERVICE (ESCIS)

ESCIS is a computer database of local and community information developed and managed by the Library and Information Service of East Sussex County Council in association with Brighton and Hove Library Service.

It is a free resource for everyone. It is free to be listed and free to use.

ESCIS is a broad directory, encompassing all community information and events in East Sussex.

The EDAA would encourage any local dementia services and initiatives to upload information to ESCIS.

For more information, visit:

https://www.escis.org.uk/

 
Volunteers

HIDDEN DISABILITIES
SUNFLOWER SCHEME

The scheme is to help people with hidden disabilities, which includes people living with dementia.

Wearing the Hidden Disabilities Sunflower discreetly indicates to people around you - including staff, colleagues, and health professionals - that you need additional support, help or a little more time. Above all, it is used anywhere where people meet. 

Since its launch in 2016, it has now been adopted globally by major airports and venues and in the UK, by many supermarkets, railway and coach stations, leisure facilities, the NHS, a number of police, fire and ambulance services, and an increasing number of small and large businesses and organisations. 

As this is an initiative welcomed by Sea DEEP members, and because the EDAA recognises that some people living with dementia will find it useful, we will be helping to promote the scheme with local businesses and organisations. We have also secured a number of lanyards and cards for distribution with money kindly donated for this purpose by Sussex Police. 


For further information, either contact us or visit:

https://hiddendisabilitiesstore.com/ 

To find out which Eastbourne retail stores and organisations are part of the Scheme (eg Argos, Marks and Spencer, Tesco, Sainsbury's etc), visit:

https://hiddendisabilitiesstore.com/find-the-sunflower

 
Volunteer Group

SUPPORT WITH CONFIDENCE

Support With Confidence provides a directory of vetted and approved providers who offer a wide range of care and support services for adults in East Sussex.

Support With Confidence makes every effort to ensure that the information in the Directory is accurate and up to date. The details of scheme members, including the description of the goods or services they provide, is based upon information supplied by them.

Support with Confidence carries out an initial vetting process of all members, prior to approval. Following approval, the scheme will monitor and review customer comments to check that members continue to comply with the terms of the scheme and treat customers safely and fairly.

The scheme cannot however:

Guarantee the financial status of any member

Accept any liability for any goods or services provided by any member

Accept any liability for any mistakes or inaccuracies in members details

Guarantee the quality or condition of any goods or services provided by any member

Guarantee that the price of goods and services supplied is competitive relative to any other member.

For further details, visit:
https://apps.eastsussex.gov.uk/socialcare/athome/approvedproviders/

 
Volunteers

SUSSEX POLICE -
HERBERT PROTOCOL

Caring for people with dementia or Alzheimer's can be challenging. 

There's a risk they can at some point start to 'walk about'. This may only be into the garden or street for a short time, but some people can get lost and go missing.

So, planning ahead to keep them safe is really important.

The Herbert Protocol is a form that carers, family or friends of a vulnerable person can fill in. It contains a list of information to help the police if the person goes missing, including:

medication required

mobile numbers

places previously located

a recent photograph

The EDAA is pleased to support this initiative; if someone living with dementia goes missing, information relating to the person will be immediately available to Sussex Police which will hopefully enable them to locate the person more quickly. 


For further information, and to download the form, visit:

https://www.sussex.police.uk/herbertprotocol

 
Volunteer Group

WEALDEN DEMENTIA ACTION ALLIANCE

The EDAA is pleased to be working alongside Wealden DAA; our paths often cross with people living with dementia accessing and visiting services either in Eastbourne or Wealden.

For further information about Wealden DAA, visit:

https://www.wealden.gov.uk/community-and-safety/wealden-dementia-action-alliance-events-and-forums/